RIDE FOR PKU: Philip, Thomas, William, Sarah and Harry Acton are riding from Townsville to Brisbane to raise money for PKU.
RIDE FOR PKU: Philip, Thomas, William, Sarah and Harry Acton are riding from Townsville to Brisbane to raise money for PKU. Peter Carruthers

Ride with the Actons stops on by

TWO of Philip Acton's three sons have the rare condition called phenylketonuria, or PKU for short.

PKU is a genetic disorder that prevents the normal breakdown of a protein found in some foods and progressive intellectual disability can result if PKU is not treated from early infancy.

All newborn babies are tested for PKU during the first few days of life and about one in 10,000 newborn babies are affected with the condition.

Mr Acton, with his wife Sarah and their three children, are on bike ride from Townsville to Brisbane to raise money and awareness of a disease that is diagnosed in 120 people in Queensland each year.

Calling into Proserpine on Monday, Mr Acton said the support on the road so far had been amazing.

Riding in the support car Mr Acton's mum, Cathy Acton, agreed the reception they had received had restored her faith in the kindness of the human spirit.

"I am happy that I am part of a nation where there are still beautiful people out there," she said.

"The truck drivers have been very polite and they warn each other that we are ahead and they have been wonderful.

"We were chatting with a couple of trucks that went by from Collinsville and Philip went to live in Collinsville in 1982.

"They have been absolutely marvellous."

Mr Acton and has crew are raising money for the Metabolic Dietary Disorders Association that help support the Inborn Metabolism community.

Ultimately the Ride with the Actons journey is designed to raise awareness of a disease that many people have never heard of.


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